For those of you who don't know....
Our precious daughter Abigail was born with a rare but serious birth defect. It is called cranolsytosis.
Craniosynostosis is a birth defect that causes one or more sutures on a baby's head to close earlier than normal. The skull of an infant or young child is made up of bony plates that allow for growth of the skull. The borders at which these plates intersect are called sutures or suture lines.
If left untreated it could cause some very serious brain damage, behavioral issues, and the like. This is new and uncharted territory for my family. Never before have we had to walk through something so difficult.
In Abigail's case surgery is the only option. And it's no laughing matter. In order to correct the shape of her skull and allow her brain rom to develop she will undergo a extensive surgery at Children's Mercy in Kansas City, Missouri. The operation will take more than 5 hours and will entail removal and re-shaping of the frontal portion of her skull. While their are risks involved with any and every operation; this procedure is fairly safe and is about 98% effective. We have a great team of people at Children's Mercy Dedicated to a quick an easy recovery. Abigail is only expected to spend 3 days in the Hospital.
It was hard to hear as the Surgeon explained all the details. And there have been many emotions expressed on this family excursion to KC. Honestly we have vacillated between anger and peace, confusion and clarity, shock and comfort, horror and joy. Today has been among the roughest days in our family Not to mention my dad being hospitalized for a hear condition! Call me crazy but I find a great deal of joy in this insanely hard season! We are inevitably facing a rather intensive operation this summer unless the Lord intervenes.
Our precious daughter Abigail was born with a rare but serious birth defect. It is called cranolsytosis. Craniosynostosis is a birth defect that causes one or more sutures on a baby's head to close earlier than normal. The skull of an infant or young child is made up of bony plates that allow for growth of the skull. The borders at which these plates intersect are called sutures or suture lines.
If left untreated it could cause some very serious brain damage, behavioral issues, and the like. This is new and uncharted territory for my family. Never before have we had to walk through something so difficult.
In Abigail's case surgery is the only option. And it's no laughing matter. In order to correct the shape of her skull and allow her brain rom to develop she will undergo a extensive surgery at Children's Mercy in Kansas City, Missouri. The operation will take more than 5 hours and will entail removal and re-shaping of the frontal portion of her skull. While their are risks involved with any and every operation; this procedure is fairly safe and is about 98% effective. We have a great team of people at Children's Mercy Dedicated to a quick an easy recovery. Abigail is only expected to spend 3 days in the Hospital.
It was hard to hear as the Surgeon explained all the details. And there have been many emotions expressed on this family excursion to KC. Honestly we have vacillated between anger and peace, confusion and clarity, shock and comfort, horror and joy. Today has been among the roughest days in our family Not to mention my dad being hospitalized for a hear condition! Call me crazy but I find a great deal of joy in this insanely hard season! We are inevitably facing a rather intensive operation this summer unless the Lord intervenes.
Our family covets your prayers during this season of life. There will be many struggles ahead and allot of trips to Kansas City.
There is a silver lining to every storm. Sometime God does calm the storm yet other times He calls us to walk through the storms and calms our hearts. We may not like it but we have to trust in Him and He will sustain us!
So it is in this time that I, call me crazy, but thank God for this trial. Because I know our God is Greater!
"Not only that, but we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character produces hope, 5and hope does not put us to shame, because God’s love has been poured into our hearts through the Holy Spirit who has been given to us.
For while we were still weak, at the right time Christ died for the ungodly. For one will scarcely die for a righteous person—though perhaps for a good person one would dare even to die— but God shows his love for us in that while we were still sinners, Christ died for us."
Honestly this is more than I can bear but I know that It is not more than He has bore! He has place my family in this time and in this season and prepared us to go through this trial long before I was ever born. He has a reason We are called to use our suffering to point others to the healing at the cross.
So call me crazy but I know that I have a reason to say that He is God. And IN him I will have no fears. My daughter will have no memory or noticeable long term effects. But our faith and bond as a family will be forever shaped by the way we respond during these trials. Our witness and testimony will be tested and in the end We will be made stronger and God will be lifted higher. Don't look at me and see strength cause there is little to none left. I have learned one thing: in everything to be content and trust God's plans.
God is still God and I am still man. He sees the future I see the present. In faith I too can see a glimpse of the future through the eyes of faith. God does not call us to take 1000 steps down the road nor to plan out every step of our lives. Instead he calls us to have just enough faith to take the next step and draw our next breath. No matter how hard. No matter how painful. He calls us to do what is the next right thing and leave the results up to Him while trusting in Him to give us strength.
PS:
I must say that We are so blessed to be surrounded by so many loving and caring people. I want to give a big shout out to my Church family! It is such a blessing to be supported through your prayers, gifts, love, and kind words! There is no way we could be help together if it wasn't for the grace and love of God I see expressed through each of you. I look forward to sharing with you these struggles and pray that in some way that as we share the hard times together that we will Grow together in God's grace. I
I must say that We are so blessed to be surrounded by so many loving and caring people. I want to give a big shout out to my Church family! It is such a blessing to be supported through your prayers, gifts, love, and kind words! There is no way we could be help together if it wasn't for the grace and love of God I see expressed through each of you. I look forward to sharing with you these struggles and pray that in some way that as we share the hard times together that we will Grow together in God's grace. I
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